Basically, having endometriosis is rubbish. It’s not life threatening (as you’ll hear many times) but the frequent trips to A+E and having plans scuppered by chronic pain are somewhat grating.
I often think of it as a guest at a tea party who always turns up late and only ever brings Garibaldi biscuits, despite me telling them constantly I don’t like raisins.
However, there are a few small victories I’ve claimed. They’re not much in the scheme of things but they make me feel a bit better, and here they are:
Keep a diary: I should confess I haven’t got round to this yet but my doctor tells me I should keep a regular record so I know where I am in the month. I can see it makes a lot of sense. Perhaps tomorrow…
I have to spend several days at a time in bed with a hot water bottle, so I’ve taken time to ensure my hot water and bed clothes look brilliant. Whether its a Salvador Dalek t shirt, tie dyed nighties (find out how in this post) or a rainbow hot water bottle, at least I look colourful when I’m in pain. And that’s the main thing.
Read Coping With Endometriosis by Jo Mears. It will at least make you feel less of a weirdo. Well, as much as could be possible for me…
Make a bath as pleasant as possible. Having a hot bath of course soothes pain and I make sure I have my favourite products on hand. As I mentioned before, the colourful soaps from Lush and the vintage inspired Soap and Glory range are brilliant.
If all else fails, at least you’re not one of these ants: